Arista Wins Top Workplaces AwardBy Paula Birney, CMA | Certified Dementia Practitioner
My relationship with my mother, Betty, in her last years would have been very different. 15 years ago, I did not understand that her unusual behavior, forgetfulness and confusion were signs of dementia. Simple tasks became increasingly difficult for her, leading to frustration and a sense of helplessness among family members who witnessed these changes firsthand.
I would become annoyed when she did odd things, bounced checks, left the oven on, and repeated herself. As her health declined, I missed the mom I had known. My children noted the changes also wondering why the meals she prepared no longer tasted as good. Unfortunately, not recognizing the signs of dementia and feeling frustrated with behavior is common among families facing similar situations.
When a loved one is diagnosed with dementia, it often marks the start of a profound shift in roles and responsibilities. Managing life with a parent who has dementia requires patience, understanding, and a willingness to adapt to evolving needs. Family dynamics can undergo significant changes as roles shift from parent-child to caregiver-patient. It’s critical for family caregivers to educate themselves about dementia, its progression, and effective caregiving approaches. Seeking support from healthcare professionals, support groups, and organizations specializing in dementia care can provide invaluable guidance and reassurance during this challenging time.
While the journey may be fraught with challenges, there are opportunities for moments of connection and love amidst the difficulties. Finding joy in small victories, preserving cherished memories, and ensuring the well-being of both the caregiver and the person with dementia are paramount. Be present in each moment. By seeking knowledge, building a support network, and embracing each stage with compassion, families can navigate this journey together with greater resilience and understanding making the most of the time you still have with them.
Today, I am a Certified Dementia Practitioner. I own a home health agency providing care for seniors and the disabled, some of whom have Alzheimer’s or other dementias. I am a community educator for the Alzheimer’s Association and a Dementia Friends Champion. My goal is to educate people caring for a loved one with dementia so their last years can be rewarding. My personal experience has made me uniquely empathetic and effective in supporting families who are navigating the challenges of dementia. Educating caregivers on how to provide fulfilling care for their loved ones with dementia is invaluable. It not only improves the quality of life for those affected by dementia but also eases the emotional burden on their families.
